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WALK NEWS
Sandy did it!!!
Sandy made it to Pennsville, NJ, and finished her journey to her mom. Sandy was joined by 80 to 100 people as she walked through the town for the long-awaited reunion. Sandy's thank you delivered to Union Presbyterian Church is on Sandy's blog.
News stories
- WAVE-TV, Louisville, July 21.
- Jennifer Dailey, Today's Sunbeam, July 19.
- WMAR-TV, Baltimore, Md., July 17
- Kristin Harty, Cumberland (Md.) Times-News, July 7.
- Tara Rack-Amber, Herald-Standard, Uniontown, Pa., July 3.
- Shelley Hanson, The Intelligencer, Wheeling, WV, June 27.
- Daily Jeffersonian, Cambridge, Ohio.
- Brian Gadd, Zanesville Times Record, June 25.
- Record-Herald, Washington Court House, Ohio, June 19
- Kentucky/Cincinnati Enquirer, June 14, 2009, by Amanda VanBenschoten. and the Louisville Courier-Journal.
- Oldham Era, June 10, 2009, by Laura Hagan.
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Thank you, everyone!
Sandy completed her walk on Saturday. She thanks everyone for all the help and support along the way.
A walk from Kentucky to New Jersey to raise awareness for a devastating brain disease
Progressive Supranuclear Palsy, or PSP, is a devastating brain disease. It ravages the nerve cells that control walking, balance, vision, speech and swallowing. There is no known cause, treatment or cure.
My mother, Allene, has it.
Since her diagnosis, I have talked to many people about PSP, and have found that general awareness of this degenerative disease is low. I decided I should dramatize the need for PSP awareness and research by walking from my home in Louisville, Kentucky, to my mother’s home in South New Jersey during the summer of 2009.
That’s what this web site is all about. You can follow my progress, arrange a ceremonial walk with me, help with my trip and learn more about what you can do to fight this difficult disease.
Please join the cause. Not just for my mother and me, but for all the others who have been touched by PSP. |
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Education for speech language pathogists and others
PSP affects communication and swallowing. As a speech and language professional, i presented information about PSP to colleagues at conventions in Kentucky, Ohio, Pennsylvania, Maryland and West Virginia.
If you would like to have the PDF handout used in my poster session, “What Every Speech Professional Should Know about PSP," please use the contact form.
To find out more about the University of Louisville's research into PSP, go to the Litvan Foundation's website.For information about research on genetic and environmental risk factors for PSP, go to www.pspstudy.com.
How you can help
Many people have asked how they can help.
- Providing overnight accommodations. I am still setting these up.
- Walking with me. I would be honored with your company - if it's a symbolic few steps, a few yards or even miles.
- Speaking to your church or group about PSP. Creating awareness about this disease is my main goal.
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Links to stories about the Walk4PSP send-off News crews from four Louisville television stations covered the send-off event June 8. Those include stories from WAVE-3, WLKY-32, WHAS-11 and WDRB/FOX-41. Addittionally, Today's Sunbeam (Salem County, NJ) carried a story about the walk. Earlier, Louisville Courier-Journal Reporter Laura Ungar wrote a wonderful feature about this summer's PSP Awareness Walk. Bethany Furkin wrote this story for the Presbyterian News Service, and Justin Willis informed Jefferson County Public Schools employees with the Monday Memo. On the broadcast side, WHAS-11 reporter Kelsey Stark did a good story as did Monica Hardin at WLKY-32 in Louisville. Learn more about PSPVisit http://www.curepsp.org for more information about progressive supranuclear palsy symptoms, current research, and how you can contribute.  |
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